My apologies for not posting sooner, I've been busy and tired.
My fatigue is SO much better than it was. I now take a nap maybe once a week and other than that I'm fine. This is a huge answer to prayer as I have mounting medical bills and I needed to find more work.
I am now officially working 4 jobs...sounds more intense than it is, but it does wear me out. I have a part time job doing online work. A Very part time job doing on site babysitting for events. I'm cleaning my mom's house during the week and I still have my full time job with Early Head Start.
My summer starts Friday, June 13th and I will have 6 weeks off of my main job. I will start my summer with a pre-op appointment, and then on the 18th, I will have surgery. They will be taking out my tonsils, fixing a deviated septum and taking out part of my palette. This will hopefully get rid of my sleep apnea and help with my continued fatigue. I am excited for this, but not at all looking forward to the recovery. It's going to hurt and there's a high risk of bleeding, so I will be on serious activity restriction for 2 weeks of my 6 week break...so much for hiking, swimming or taking my nephews to the zoo in June. But hopefully the recovery will go well and I can in July.
I still owe more than I make in a month in medical bills, and will only owe more with the surgery, but cleaning for my mom is a HUGE help (THANKS MOM) and I should be getting more hours with the babysitting company and there is a continued hope that we will get a cost of living raise at my full-time job in the fall. I'm not going to get out of this any time soon, but it's nice to finally feel like it's not burying me.
While I'm feeling better energy wise, I still have a long way to go. When I began treatment I was told I should be feeling better by June...but with money issues, I haven't been able to continue with my treatment, required diet or meds/supplements. I am hoping that I will have time this summer to prepare some foods and eat right. After I pay down my medical bills a bit more, I will be able to return for the meds and supplements I need to truly return to my old self.
It's hard to explain that while I have more energy, I'm not better yet. I still have horrible brain fog. I get over stimulated just going to the grocery store, and new places exhaust me. I have a hard time holding a conversation, and get lost driving in town (I've lived here almost my whole life and it's the town I've driven in the most). It's embarrassing and very frustrating. I still avoid social situations as much as possible because it's hard to concentrate and groups can be overstimulating too. In a lot of ways I'm an infant again, getting my senses and mind used to things again. I've had a few friends who are very understanding and being close to my family is a huge help, but it is isolating.
I'm looking forward to this summer and am hoping for an easy recovery from the surgery. My goal is to read some books again and to eat only the foods I'm supposed to. I'm also hoping to do some fun activities and attend barbecues each week. I really want to be back to me, and I really want to lose the 40lbs I've put on since all this health stuff began.
This season is really rough and I'm looking forward to being on the other side of it. It's nice to see the light at the end of the tunnel...but I'm more than anxious for the next leg of the journey to get me through it.
I will do my best to update monthly again. Not much else to report...or if they're is I can't remember it (I also miss being able to remember things...I used to have such a good memory).
Be praying for my recovery and for continued provision to cover bills and food, as this causes me a lot of stress and takes a lot of brain power each month to navigate. Be praying for my mind, that I would be able to focus, to remember and to have the strength and energy to spend time with friends. Be praying for my friends, that they would understand and be able to support me as I need.
